Miu is a vibrant, energetic eight year-old, who lives in my area of Saitama, Japan. Miu was diagnosed with restrictive cardiomyopathy, a heart condition, and is currently needing donations for a heart transplant planned to be taken place at Baylor College of Medicine Texas Children’s Hospital. Alex and I saw her family and supporters at JR Omiya Station last Sunday, and we donated as well.
From Miu’s parents:
“Our daughter was a girl who loved to move until she was diagnosed with restrictive cardiomyopathy by a cardiac examination when she entered elementary school. Since she was about 4 years old, she was prone to catch colds and took me to pediatrics frequently, but she was repeatedly diagnosed with cold symptoms. If you think about it now, the disease may have started from that time. The progression of the condition after being caught in an elementary school heart examination was registered for transplantation in Japan one year after it was diagnosed very early. Restrictive cardiomyopathy is an intractable disease that is said to occur in 1 in 500,000 people who suffer from diastolic dysfunction due to the gradual hardening of the heart muscle for unknown reasons. For children, the progression is fast and early transplantation is the only way to help. In addition, pulmonary hypertension has been associated with the disease since the beginning of the diagnosis, and the lungs and liver worsen as the condition progresses. Currently, cardiotonic drugs are used to save lives, but the condition is progressing day by day. Know the reality of this girl We also kept believing that it was a dream or something that could be cured, but in the end the condition only progressed. What can I do for this child? It is very painful for us to keep an eye on it. My daughter lives while facing her illness. The condition progresses quickly and there is no time left in Japan. I want to save my daughter if there is a way to save her. The travel transplant in Corona was desperate, but thanks to the efforts of many people, we received a reply from the Texas Children’s Hospital, Baylor College of Medicine, Texas. However, overseas travel transplants are very expensive and cannot be covered by individuals. This time, we asked our friends who have a passion for our daughter to form a party to save Miu-chan. It is a very selfish request, but in order to save the life of my daughter, I have no choice but to pray in good faith. We appreciate your support and cooperation.”
Please visit Miu’s fund-raising and support page and other social media pages, and support her if you can…I’m sure Miu and her family will be forever grateful!!
Update: it was announced that Miu’s family has successfully raised enough funds.. Fantastic!! Please check her site and social media pages for more info!! Congrats, Miu!!!!